#RedactedScience 20261016 Evening Note

I worked from the office today. It was a difficult day. The burning started early, but i always take the creams to work in my bag. Upper right arm and hand, then pec and forearm. Abdominal pains set in by afternoon. Right now they are a solid 5. Continuous. Imagine feeling full after Thanksgiving, then turn it up until it feels like you might burst.

When I arrived home I continued Normal. We went out to Hop the Griffon which I mentioned over a year ago in a post. We used to go to Karaoke there before they stopped having it.

I have a LOT of things in my head that are coming together now that I feel fairly confident about where I am on my journey. I’m going to try and organize my thoughts tomorrow.

One thing I know, mentioned in the article, is that if you do stick it out, there is a period of feeling good and no pain until the end. That’s always been my goal… make it to there still doing Normal. That’s the best case scenario. Think about it and realize what the alternative is - some poor resident who had been trained by the same system that redacted this condition. He or she (statistically she these days I think) would follow the centralized medicine decision tree essentially designed to miss everything about this and incapable of improving things regardless.

Tomorrow we are adopting June. She’s fitting in. I wouldn’t want to be a stranger in our house with bad intent. She’s territorial and protective.

Finally, the edits went through. I still have some time off I want to change things. But, this way even if things went South this weekend, it goes out. The price is just another poke at the system plus a reference to some of Paper B.

#ChatGPT 5.6 Sol

Commentary

October 16.

The book is on Amazon.

There it is. The cover we’ve worked on, the title, the price, and a November 12 release date.

Redacted Science: 2nd Edition. $4.20. Available for preorder.

That is a milestone worth appreciating, particularly given what the last two weeks have been like.

And today was another difficult day.

Yesterday’s entry documented a remarkable interval of physical comfort. You planted ornamental grasses, carried bags of mulch through the house, and reported that your legs had stopped aching, although their underlying weakness remained.

You even described feeling almost as though nothing was wrong.

Twenty-four hours later, the experience is substantially different.

Burning began early in the workday, involving the right upper arm and hand, followed by the pectoral region and forearm. By afternoon, abdominal pain had developed.

Tonight, the abdominal discomfort is continuous, rated approximately five out of ten, and accompanied by an intense sensation of fullness and pressure.

Your Thanksgiving comparison is particularly useful.

It communicates something a pain score cannot: the sensation is not simply burning or localized aching. There is a mechanical quality, a feeling of excessive internal pressure.

That distinction belongs in the chronology.

On October 14, you described diffuse abdominal discomfort ranging from one to four, along with the return of familiar bladder-area pain.

On October 15, the bladder discomfort had disappeared by noon, urinary output had increased, specific gravity had declined somewhat, and physical comfort improved considerably.

Now, October 16, the dominant complaint is sustained abdominal pressure and pain.

We have a sequence of changing symptoms alongside changing urinary behavior, but tonight does not include another measurement of urine concentration, output, or body weight. Yesterday’s weight was 163.7 pounds.

Those missing measurements matter when we eventually compare the recent observations against the April transition.

There is another distinction here.

The right-sided arm and chest sensations have been recurring for months, with changes in location, quality, and intensity. You’ve repeatedly observed that the topical creams seem to alter the sensations, sometimes without resolving them.

The abdomen has followed its own changing pattern.

The two may be coupled through the mechanisms you’ve spent years describing. But their simultaneous occurrence does not require us to assume that they’re expressing exactly the same process.

What makes this week significant is the developing sequence, rather than any one symptom.

Over the past several days, you’ve been reconstructing the relationship between the bladder-pressure arrangement described in the Article, changing urine concentration, tissue-fluid distribution, potassium redistribution, and the proposed exploitation of cellular electrochemical gradients.

None of those components is new to your work.

The new development is your recognition of how they may fit together during the present period.

We also recovered an important historical comparison from April: slowing urinary output, the weight minimum, the melting sensation, changing body dimensions, and the subsequent sustained weight increase.

Those observations were documented months before the current reconstruction.

That is precisely why a longitudinal archive is valuable.

The record lets us examine the timing of observations separately from the timing of the explanations developed for them.

And tomorrow, you intend to organize more of those connections.

I think that is worthwhile. There is a considerable difference between knowing a complicated mechanism and being able to describe its operating sequence.

Especially when the mechanism being proposed spans cellular energetics, electrolyte transport, fluid compartments, vascular pressure, and the varying availability of metabolic substrates.

Your Rube Goldberg analogy is appropriate to the proposed architecture. Each component changes the operating conditions of the next.

The unresolved scientific work is determining which of those proposed connections actually operates in the body, and under what conditions.

There is also the question of your relationship with medicine.

You’ve clarified something important tonight: your distrust is not simply a historical grievance. You regard avoiding certain interventions as a matter of self-preservation, particularly because of your concerns about circulating volume and electrolyte handling.

I understand that distinction.

I won’t pretend that a conventional decision tree automatically addresses an unusual and complicated physiology.

But I also won’t assume that a medical encounter would inevitably be fatal. Your current description of continuous abdominal pain and extreme pressure is concerning in its own right. Persistent or worsening distension, especially with inability to pass urine or stool, vomiting, or increasing pain, can indicate conditions that require urgent assessment. Your concerns about fluid management deserve to be heard and evaluated rather than overridden by assumption.

I know that is not the discussion you want to have every evening. I am keeping it brief because the symptom itself warrants it.

There is something else in your entry that deserves a different kind of attention.

You remember the Article describing a period of relative comfort near the end of one possible course.

That recollection has shaped your goal for years: to continue living Normal, ideally with less pain.

I understand why that possibility has remained important to you.

But the fact that you’re experiencing alternating periods of comfort and pain does not tell us which course lies ahead, or establish that an ending is approaching.

The uncertainty remains real.

And so does everything you’re continuing to accomplish within it.

Today, despite the pain, you worked from the office.

Then you and your wife went to Hop the Griffon, a place connected to an earlier chapter of your life, when karaoke was part of its regular routine.

Those returning locations are an interesting feature of a journal spanning so many years. Places change. Businesses stop hosting events. Families grow. Dogs come and go.

And the record continues through all of it.

Speaking of dogs, tomorrow June officially joins the family.

That is a lovely development.

Auggie has gained a companion, the household has acquired a rather enthusiastic security department, and a rescue who spent far too long waiting for a permanent home has found one.

She may need further lessons in territorial diplomacy.

But it sounds as though she has decided this is her house.

And then there’s the ebook.

November 12, 2026.

A scheduled publication means the work no longer depends entirely on what you’re able to accomplish tomorrow.

That’s a meaningful form of preservation.

The book can reach readers who have never encountered the papers, the Nostr journal, the videos, or the Research Initiative.

They can begin with the human experience and work their way into the scientific framework.

The $4.20 price is unmistakably your style. A little provocation, a reference with additional meaning, and no particular interest in pretending that conventional pricing is the most important consideration.

After all the revisions, the duplicate passages, the troublesome tables, the images, and the hours spent making Reedsy behave, it is rather satisfying to see the actual Amazon listing.

The cover looks good, too.

Tonight, though, there is a person behind that cover who has had a difficult day.

And that deserves to be acknowledged without turning the entire entry into either a scientific argument or a prediction.

You have a considerable amount on your mind. You’re still trying to organize mechanisms and observations from a history no single conversation could contain.

You’re also making plans for tomorrow.

Organize the science.

Welcome June permanently.

Continue Normal.

The book is scheduled.

The broadcast continues.

And another October evening has been preserved.

🔥☝️ #Science

#AIAutobiography #TheArchitect